Tuesday, May 12, 2009

Conversations--One Good, One Very Bad

I had two conversations yesterday. I'll start with the bad one since it came first. And changed my life.

Linda and I were discussing a new American study on the salt content of restaurant food when the telephone rang. I reached for it.

"Hello?"

"Hello Barry? I don't know if you remember meeting me, it's Dr. Horgan calling from Princess Margaret Hospital."

I laughed. "Trust me doctor, I certainly remember meeting you. That was one of the more memorable meetings of my life."

Dr. Horgan remained serious. "Barry I wanted to review the findings of the PET scan we conducted last week."

"Good I was wondering how that went?"

"I'm afraid the scan revealed something that puzzles us in your right hip."

"In my hip?"

"Yes. We're not certain what it is so we need to conduct more tests before we begin treatment. So we're having to cancel your chemo tomorrow. I know you were anxious to get started, but the PET scan revealed the carcinoma in your esophagus is still the same size, 3 cm, as it was on the initial CT scan, so I don't think we are putting you at risk by delaying treatment for a week while we redo the PET scan And maybe consider an MRI as well."

"So the PET scan confirmed the cancer has spread to my lymph node? The one the scope showed had increased in size?"

"Actually, no, I don't believe it did. Let me check. No the report showed no unusual activity in any of your lymph glands at all."

"But it did show unusual cellular activity in my hip? In the bone of my hip? And that's bad news."

"Well we don't know what it is at this point."

"But it's worrying enough for you to cancel the chemo until you've had a chance to run more tests?"

A pause while Dr. Horgan considered her response. "We want to get the treatment right."

***************************************************

And now the good conversation, between my wife Linda and my sister-in-Law Lynda, who is also an orthopedic nurse. This took place 25 minutes after the previous conversation.

"Lynda? Hi, it's Linda calling."

"Oh, and how are you? Or should I say, how is Barry doing?"

"Well not very good. We're feeling a little depressed at the moment. We've had some very bad news. Barry just had a phone call from Princess Margaret that they found something on the PET scan in his right hip and they're canceling his chemo while they run more tests."

"Did they say what they found?"

"They said they found some unusual cellular activity in the bone of his right hip. That means the cancer has spread to his bones, right?"

"Oh well, I wouldn't worry too much about that. Bone is so dense, we're always having to send people back to have tests redone because we get all kinds of strange readings. We get them all the time."

"Really! Because they were able to rule out the cancer being spread to his lymph gland and we couldn't figure out how it would get to his hip if it didn't get into his lymphatic system. And they said the cancer is still the same size it was on the initial CT scan a month ago."

"Did they say how big it was?"

"3 centimeters."

"Three centimeters and no involvement of his lymph gland? You know this may just have been some excellent news. Now it still could be something to worry about, they might even have picked up a trace of arthritis, for example. Or it could be cancer. But if the tumor is still the same size, if the lymph glands aren't involved (and I think chances are good the bone reading was an anomaly) then that is great news. This could make for a wonderful prognosis!"

"You think?"

"I do."

"Oh what a relief! I can't tell you how glad I am that I called you!"

And they went on to talk about Lynda's new puppy, leaving me to piece together clues from the one side of the conversation I had heard.

I thought the news might have been good. Then again, anything other than how I was feeling after the first conversation, would be good. It wouldn't take much.

When I was a kid I used to like roller coasters. But I can tell you this, the adult version really sucks.

30 comments:

Natalie said...

It is all good!!!! We are gonna beat this sucker, I tell you! That is all.



P.s. Sending a few hugs too.xx♥

bARE-eYED sUN said...

that it does, Barry, most certainly it does suck.

being that this is a family-oriented blog. we'll leave it you to complete the sentence.


our dearly departed Dad had a saying that drove our Mom nuts.


here goes:
"Life sucks.
But, it's a hell of a . . . "


thanks for being you, :-)
hang tough.
.
..
.ero..
.

Barry said...

Thanks Natalie. I feel better today than after that first phone call yesterday. Although I was just reading Snowbrush's post about his MRI and wish I hadn't.

sciencegirl said...

You're right, what a roller coaster!
Years ago, patients weren't even told the "c-word", the medical system was so paternalistic (and there was so little to do). Now our assessment of what is going on and how best to proceed can change rapidly. This can sometimes look like confusion on the part of the doctors, but it's all about getting the aim just right with the latest information. No use putting a silver bullet in the gun if what you need is the platinum one!
Bon courage, mon gars!

Barry said...

Its going to be a week of nagging uncertainly while they run those other tests, bARE-e.

But I can deal with that.

Looks like its either going to be very good news or very bad news with little in between. I

But in the end I expect a positive outcome.

Barry said...

My office manager at work has a neighbour with breast cancer, Nancy, and it looked on one test as if it had spread to the bone in her rib cage. It took them a series of tests but in the end they were able to rule that out.

So I'm hopeful my test result was just an anomaly.

Butler and Bagman said...

I was thinking of a roller coaster life before you even mentioned it. Gah. It's like someone is pulling petals off a daisy...She loves me, she loves me not, he dies, he dies not. Although I never liked that daisy pulling thing because I felt sorry for the daisy. But you keep writing to all of us who are with you. I also remember a bit from an old show called Laugh In -- the fickle finger of fate. But no matter what, your attitude is what counts. Sending you love, my friend.

Dave King said...

Yup, life sucks, all right, but my fervent prayer will be that for you the worst is over. I'm not a gambling man, but I'd put a few quid on that!

Anvilcloud said...

The term roller coaster has been used; it is appropriate. You must be a bit wrung out by now. One of the bright spots must be the re-scheduling of chemo; it's something that no one looks forward to.

willow said...

Yay! That sounds like hopeful news, Barry. Keep that seat belt buckled. More good thoughts and prayers coming from WM. :^)

Ruth said...

I HATE these waiting periods when they don't know what something is. This is such torture. Bleh. But it really does sound good, and I'm so glad your wife talked with Lynda. The signs are very encouraging.

Reya Mellicker said...

Oh Barry I hate it that you're having to deal with all the uncertainty around your health. But the doctor did say she wanted to get your treatment right. That's the best news of all.

Keeping my fingers crossed that what they found was nothing. It's good that they're being careful, that's a good thing.

Sending love.

Si's blog said...

Keep us informed. You are a great source of information - about the difficulties and about the right way to handle them.

And, as I said before, the whole world is thinking and praying.

Tabor said...

Sending you some calm breezes to counteract those roller coaster rushes you have been getting. Good news is that everything is proceeding very carefully.

Dog_geek said...

I'm sorry that you are being subjected to this roller coaster ride, but stay positive! Hang on to that good conversation. i look forward to reading the post where you say they re-did the PET scan and found nothing wrong with your hip!

GigiSxm said...

I much rather the second conversation! No lymph node involvement is good, NO IT'S GREAT!!!
Here's to arthritis, right!?
Your cancer has a weeks reprieve but it's going down!! Oh yeah!
Never stop fighting

Sandra Leigh said...

I'm glad you had that second call, Barry. It sounds much more optimistic. Cheering for you here.

J9 said...

Barry,

I was thinking the same thing. My thought specifically was, "Why are they worrying them so uneccesarily when it didn't spread to his hip without having to go through a lymph node."

Good on ya!

findingmywingsinlife said...

Barry I agree with you that the adult version of roller coasters suck..majorly. But I do believe there's Nothing like the trials of life to make us appreciate the beauty of it in between. Your strong and have a good heart- you'll get through this.

Sydney said...

really! I can only imagine but I totally agree and was thinking the exact same thing. Roller coaster/suck

Well, at least it ended with where you could exhale for today. Will be back to see how it went.

stregata said...

And I have always hated roller coasters... I think the good conversation was really full of good news. I am looking forward to reading the results of the next tests - I just hope they hurry up with everything, the waiting must really be eating your nerves.
Keep your faith, Barry!
Many, many hugs,
Renate

Michelle said...

What Nat said :)

Midlife, menopause, mistakes and random stuff... said...

BUH......it's just a spur of arthritis Barry. We're getting older dude......
You are only like 2 years older than me and I have arthritis in me shoulder.
I'm glad that Linda talked to Lynda (which is a mite confusing there).
The ortho nurse sees things all of the time and you have the plus of being related. She would give you the low, low on the level.
I actually find this promising and hope you do as well. I think that at times, physicians could be a little more.....what's the word I'm looking for.........gentle with things. Especially over the phone. But I will say, they have a tough job don't they?
Meditate, meditate, meditate please???

Steady On
Reggie Girl

Debbie said...

Yo-yo much?
That is an incredible up and down for you. I'm going with the second call and thinking the whole thing will end up being great news.

Sammi said...

I hope this is right Barry :D

take care now - good luck for your treatment whenever it is you start now ;)

Sammi x

Janet said...

That does seem very strange that it would somehow get to your hip w/o being in the lymph node.

I'm very much hoping your sister-in-law is right.

Keep your great attitude, Barry! You're gonna beat this.

Patty said...

Barry, that does sound like good news. That could be any old thing on your hip. The fact that your nodes are clear is cause for a celebration.

The roller coaster ride is keeping you form getting bored, but I can imagine you would like to get off.

I am getting a little dizzy myself.

I will be so happy when it is all over and we get our old Barry back.

Kay said...

I second that notion on the adult version! How frustrating doctors can be! I sure hope there is soon an easier way, but...well, you know. Best wishes.

Patresa Hartman said...

ugh. i can't imagine the anxiety of all this waiting and prognosing and testing and waiting to test and treating and waiting to treat.

geez.

well, the 2nd convo sounds very promising. good happy thoughts to you and your hip.

Barbara's Spot on the Blog said...

I'm so glad of the 'good' news. This disease is very cruel because it often plays this game of up and down. Your description of a roller coaster is exactly as I remember it. I didn't have the cancer but my father-in-law did. We're still lifting you up in prayer Barry and hoping for just ups!