Monday, May 18, 2009

Lost Companion

On Tuesday I will be seated in the comfort of a GO Commuter train, rushing from the far suburbs into the very core of the City of Toronto. It will be my first trip to Princess Margaret Hospital without my constant companion, a spunky little girl desperately trying to make sense of a world filled with adults wounded beyond even her powerful imagination.

Her name is Virgina Kate Carey and she lives in the pages of a novel written by Kathryn Magendie, a frequent commenter on this blog.

I will not be starting chemotherapy on Tuesday as I'd hoped. A phone call from my oncologist at ten o'clock last night brought news that a recent MRI has shown no sign of cancer in my right hip. News that was an almost staggering relief.

However it did raise an additional concern and an additional worry.

This is beginning to be the start of a familiar pattern. An endoscopic examination suggests a problem with my lymph nodes. A PET scan shows this not to be the case but raises the possibility of my cancer having spread to my hip. An MRI reveals no sign of cancer in my hip, but now suggests a problem with my bone marrow.

Yet on the train rides into the city, my mind hasn't been on my medical examinations and the frightening problems they suggest. I've been living in the world of Virgina Kate in the beautiful mountains of West Virgina, admiring her strength and imagination, engaged by her brothers' joy of living despite all odds, appalled and confused as she is by the adults in her life. Haunted, as she is.

On Tuesday, instead of chemotherapy, I will be going for further blood tests and X-rays. The oncologist has never seen anything like the image of my bone marrow revealed by the MRI and doesn't know what to make of it. She consulted a specialist who is also confused. Red blood cells are manufactured by bone marrow and any damage should compromised my red blood cell count. But mine is normal. It's a puzzle.

Tender Graces is a complex novel of powerful characters in exotic settings wrestling with life's relentless and all too puzzling demands. It is by turns horrifying and exhilarating, hilarious and all too real. It has one of the most unlikely heroes in modern fiction. I know you've heard that before, but this hero isn't a ghost or a man from Mars, it is a woman who emerged from her own troubled past and became through her own efforts a normal human being. Normal in a clinical, not a statistical sense. A woman whose very normalcy transforms, and challenges, all the other characters in the novel. And maybe the reader as well.



But Tender Graces is finished now. Read from cover to cover. I will no longer have to put up with the smirking glances of other passengers looking at the sprawling six foot man reading the book with the pink cover and photo of the woman in pretty dress holding the hand of the little girl. Despite its appearance, Tender Graces is not a woman's book, at least not exclusively. It is a very adult book in which very real characters wrestle with life's complexities and come to their own conclusions.

It informs us about the human condition with, at times, breathtaking honesty and with a language that is startlingly poetic.

There have been times recently when I wish I would hop on the back of Virginia Kate's imaginary horse Fionadala and just ride up into the mountains higher and higher until the world and its troubles is barely visible far below.

But there are no mountains in Toronto and I will ride the GO with lesser companions to read.

And Linda, of course, who brings her own normalcy to my life.

47 comments:

Tabor said...

Isn't it wonderful when an author's talented writing can bring such escape and mystery into our lives? Just the respite you need while facing all this prodding and pulling and questioning. You are a man of mystery, but they will get to the bottom of it and you will be able to start your battle at long last.

sciencegirl said...

Great news that there's no cancer in your hip! I wish you patience as the roller coaster takes its tortuous course toward figuring this all out and getting on to the best treatment.

Natalie said...

I am thinking positive,positive, positive thoughts about hips and marrow.
I am thinking Kathryn is a very clever lady.
Any big guy seen on a train, with a pink book is a WINNER!

I am thinking you will win.xx♥

Barry said...

I like that Tabor. A "man of mystery" sounds much better than a constant puzzle.

Barry said...

My dream is that treatment will start one of these days, Science Girl.

In the meantime I continue to be studied.

Ruth said...

Won't it be nice when you look back on all this and feel special for having such anomalies?

If you need a new good read (and Magendie's sounds fantastic), please try Anne Michaels' Fugitive Pieces. Problem is, it isn't available in bookstores - has to be ordered online.

If you send me your snail address, I'll order it and have it mailed to you: ruth.mowry@gmail.com

Barry said...

There might be many reasons beyond being a Winner why a man might be reading a pretty pink book, Natalie.

But I like the sound of "Winner"!

Barry said...

Very kind of you Ruth. Please let me know what it costs.

Butler and Bagman said...

Good luck on Tuesday. Glad to know there is no cancer in your right hip although I should note your clever (or maybe Freudian slippish) word choice that it was a "staggering" relief. I know it is disconcerting, all the different testing. When I first learned I had prostate cancer, I was really surprised when they seemed less interested in that than in looking all around to find out what other kinds of cancer I might have. How many different things can we worry about at once?

Barry said...

That might be the real study they have me signed up for, B&B. How many different problems can we diagnose before this guy's head explodes?

And "staggering" was a Freudian slip. Funny how your head plays games. I guess when it isn't being used, the brain finds ways to amuse itself.

Michelle said...

Smooches to you Barry

xxxxx

stregata said...

Dear Man of Mystery,
Now, isn't that neat? So your newest hobby is puzzling doctors - what a cool way to get even! Although I'm sure you would prefer things to be less puzzling and to start moving forward. Still holding you, Linda and Lindsay in my thoughts...
That book sounds amazing and I am relishing the vision of you on the train with the book.
Renate

Kathryn Magendie said...

Barry - I am stunned by your comments on TG and Virginia Kate - but I am also overwhelmed, and flattered and joyful and feeling emotional and -- these comments coming from you mean more than you can know. I was reading them aloud to GMR, saying "GMR! listen to this~! Oh!" You have made my morning - a morning that began with me feeling cranky and moody - and suddenly those old dark clouds drifted away and I am smiling.

Now, as to your test results - of course I am glad they have found no cancer, but I can hear too your worry that something may have been missed (again?)? I think there is a certain amount of comfort in knowing there is a set treatment and that treatment will lead to this and this will lead to everything back to normal and you gear yourself up for that, and then when the plans change, there is all the uncertainty all over again!

I am going to carry the image of you on the GO and it will bring back a smile when I'm feeling cranky, moody....thank you, Barry - *hug and hug*

Linda said...

I think because you signed up for the study group, they have to know what everything is before they start their war. They don't want to kill the part that rides the GO train reading a pink book and they don't want to kill the BRAVEHEART part. Doctors haven't seen much of you because you've never been sick. I'm not surprised after studying you, they don't understand how you work. You are an enigma. Hey, I had that hip area figured out right away. =D xxx

Patty said...

The books sounds wonderful. Willow, any good reading you could suggest for Barry?

"Puzzled doctors" sounds like a good thing, Barry. Doctors are always puzzled by miracles. I pray that you are going to turn out to be one big old miracle.

Barry said...

Wow Michelle! And we've never met! lol

Barry said...

Renate, you don't know how difficult it is be be a Man of Mystery while reading a pretty book on a crowded GO train! lol

Barry said...

I'm relieved you enjoyed it Kathryn.

I hope I didn't disturb you from your hard work on book two. But maybe you could asked the publishers to make the cover of that novel blue or green or yellow or orange or.....

Barry said...

That's quite true Linda. If I hadn't joined the study group I wouldn't have had the PET scan. If I didn't have the PET scan I wouldn't be getting the X-Ray and the extra blood work.

I knew there was a reason I've stayed away from doctors in the past!

Barry said...

One big old miracle would be a Good Thing, Patty.

Kim said...

Barry,
I linked to Kathryn's site and am excited about this new read. By the way I love your book list, we have similar tastes.

I've always done life with a good book to read. For me, reading helps me get away from the daily drama and immerse myself in another world that speaks to parts of my soul that daily drama does not reach.

I will be thinking of you this week as you undergo more tests...

Sandra Leigh said...

That Virginia Kate is something special, isn't she? I had to set aside special, private times to read Tender Graces, because sometimes I just had to read it aloud to get the full lyrical impact.

Yours is quite a journey, Barry, and I suspect it is your positive attitude and sense of humour that will see you through it. I wish you well.

willow said...

I believe in miracles. And I am praying for one. Hang tight, my friend. ~x~

willow said...

And, hey, I like your new hat!

sweetmango said...

did u ever think that maybe your bone marrow is working its own healing magic??? That it is doing something different to help the fight from within your own body?

I adore how much you enjoyed the book on your train trips, i love it when we identify with a character so very strongly, our own type of unlikely hero...actually that is kind of how I feel abut you :)
xxxlovetobarryxxxx
sm

J9 said...

This whole good news/bad neews thing would make me flip out - glad to read that you are learning to take it in stride!

Lisa said...

Kathryn is an amazing lady and i am so happy for her success.
You feature regularly in my prayers dear barry and your strength and determination shine through your words.
Hoping for continual positive news.....and a new book to read xx

Lisa said...

btw, i am sending a certain angel named joy to see you- or Linda maybe - tee hee xx

Mary said...

Barry,

Tender Graces sounds like a book that I would enjoy. Thanks for the heads up.

I hope that your trip to Princess Margaret is successful. I'm glad there is no cancer in your hip. That is terrific news.

Take care of yourself. I think you might like a book called, Daisy Chain by Mary DeMuth. It is a story of a small town and a missing child and is very powerful.

Have a great week.
Blessings,
Mary

Barry said...

Thanks Kim,

I decided to expand my old book shelf since I couldn't fid a way to make it display the books I'm currently reading.

Barry said...

I enjoy reading about your life on the Turtle too Sandra!

Bon Voyage!

Barry said...

Its actually a very old hat, Willow. And an old picture for that matter. I should get Linda to take a new shot of me sometime.

Barry said...

That's nice of you Sweet Mango! Thank you.

Barry said...

Some days I take it in my stride more than others J9.

But I'm doing well considering.

Barry said...

Oh yes Lisa! Send Joy my way. I'd love that.

Barry said...

That sounds very interesting Mary, thank you.

Kikit said...

"I will no longer have to put up with the smirking glances of other passengers looking at the sprawling six foot man reading the book with the pink cover and photo of the woman in pretty dress holding the hand of the little girl."

One of my high school teachers told me that pink is actually a male color. That's why women love it. I'm not sure if she was kidding though. :)

Love your sense of humor Barry!

♥ Braja said...

Barry, how lovely to meet you and read your sensitive writing...I have heard of the book you mention and your post was a reminder of it...

I am glad there's no cancer in your hip, though as you note, there is undoubtedly something in the future and I wish you strength and tolerance in dealing with it...I hope we get to know each other more :)

findingmywingsinlife said...

Barry,
Thank you for the heads up on a good book..I will be checking into it, and I hope all goes well today and your physicians try to determine what it going on with you and what the best course of action will be. Take care, be strong and of courage in the face of your fears, you may borrow a bit of my childhood courage that got me through tough times should you need it...

Cheffie-Mom said...

Blessings to you. I'm sending hugs your way.

The Scribbler said...

Nothing like a great book to immerse you into another world. I loved "The Story of Edgar Sawtelle" and "The Corrections". They helped me pass time on the GO. Maybe they can help you too!

Patty said...

I was just checking in for a update, Barry. It is late on Tuesday evening and I was wondering how you were.

Alison Leigh said...

My theory is that Dracula runs the hospital - these "tests" are his constant source of nourishment. And we all thought Dracula was just a myth...

Paula Shalders said...
This post has been removed by the author.
Anvilcloud said...

You are a puzzling case. :) Best wishes.

Paula Shalders said...

Dear Barry,

It has been some months since I read your Blog. I read your war How I Met My Wife Stories and loved it - perhaps it was the innocence of the time & of yourself. I could see my lovely husband in it.

It was with some surprise that I found myself reading your blog tonight and to find you ill of health.

How precious life is.

How precious the written word.

I hope for the best for you.

Paula Shalders
Kiwi in Oz

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