Tuesday, June 9, 2009

FU



"No, it's 5 FU," the pretty Indian nurse explained, "Short for Five Fluorouracil your second cancer drug You'll be taking it 22 hours a day everyday this week and I'll be sending it home with you along with this pump."

"Five Flor....Flor..."

"5FU." She said.

I looked at the pump and the large bag of clear fluid on the table beside my bed in the Chemotherapy Day Care Centre.

"Did you bring a fanny pack?" the nurse asked.

"No, was I supposed to?"

The nurse shook her head sadly, "They prescribe 5FU and always forget to tell the patients to buy a fanny pack. You'll need one because you're going to be wearing this for the next 22 hours."

She turned to my brother-in-law who had come with me today. "Maybe you could run down and buy one. They sell them at the hospital tuck shop, or if they don't have them there, Staples is just down the block and they sell them as well."

"Sure, no problem," said Steve, getting up from the chair beside the bed.

"It needs to be about this size," the nurse said gesturing with her hands.

Steve nodded and started off on his quest for an FU bag holder.

The Chemo Day Dare Center is a long narrow room on the 2nd floor of Princess Margaret Hospital with beds along each long wall, separated by a hospital curtain for privacy. But from my bed I could see across the room into the bed of everyone across the next wall, where they all sat looking back at me.

I waved. But no one responded. No one was looking like they were having a good time.

My nurse laid out the various bags in her container on the top of my table.

"These are the medications you'll be getting today." she said. They all looked like bags of water in various sizes. "First a saline solution. Then an anti-nausea drug. Then Cisplatin your main cancer drug and finally another saline solution."

Having already implanted a splint in my vein, she hooked me up to the saline solution. "This will take about 40 minutes," she told me.

I settled back in the bed. I had brought "Fugitive Pieces" by Anne Michaels with me to read. It had been given to me by Ruth at the Synch-ro-niz-ing blog and was a very lushly worded tale of Jacob Beer, a wild young survivor of the Nazi Holocaust who struggles to find meaning in the abyss his life had become. I was about 3/4 of the way through and Ruth thought I'd like the book, but instead I loved it.

Forty minutes flew by and the pump beside my bed started ringing. The nurse hurried over to check the bag. Saw there was a little of the fluid left and reprogrammed it for another minute or so. Across the room other pumps were starting to ring and nurses were whirling around resetting the pumps or exchanging bags.

When my pump rang again she replaced the bag with the anti-nausea medication and then Steve was back with the fanny pack, his face wet with sweat.

"The tuck shop was out of them," he explained. So he had gone Staples but they were sold out. They sent him to Roots. Roots sent him to Mike's Work Wearhouse who sent him to the Mountain Canyon Coop. But by now he was half way down to the lake. However they had a variety of fannypacks in all different sizes, but when he went to check out they wouldn't sell one to him.

"You had to be a member," he told me. So he had brought a membership. A long exhausting trip but at least he had found a fannypack.

"Too small" said the nurse as she passed. "It's got to hold the 5FU medication and the pump." She showed him.

Steve wiped his forehead, turned tiredly and trudged back out into the heat of the day mumbling something which sounded somewhat like a shortened version of 5FU.

"Now we come to your cancer drug," the nurse said, changing my bag. "This will take about an hour."

I took out my ipod and opened itunes to Diane Arkenstone and lush music filled my head. I relaxed into it and returned to Jacob Beer. Time passed quickly and Steven eventually staggered back with a larger fannypack. I was switched to a final saline solution.

Then the nurse returned to hooked me up to my 5FU pump which she loaded along with the 5FU bag into the fannypack. She showed me what to do if it ever sprang a leak and when to run to emergency if it ever pulled out of my arm. Then she turned it on.

The compressor started pumping.

FU it said.

"It says FU" I said.

"No it doesn't," said the nurse. "That's just a mechanical noise made by the cmpressor.

"FU," said the pump.

We all laughed.

And my first chemotherapy treatment was done.

Instead of feeling nauseated or fatigued, I left feeling strangely exhilarated. In fact I found I had more energy than I had in days.

Perhaps it was all the water they pumped into me? Or maybe it was the morning of enforced relaxation? As the day wore on I found I had more energy than I had had in days.

Or maybe it was just the funny name of the drug that lifted my spirits?

39 comments:

Daria said...

Barry, it did they give you pills to take ... some of them may be steroids. The steroids give me energy until I run out and then it's a downer.

sweetmango said...

or maybe it is the fact that FINALLY we are starting treatment!! Yes I know i said 'we' but i do feel like i am there with you, you know that :)
maybe it is just all of the above making you feel so good, i dont care what is making you feel that way, I am just so very glad you are feeling that way.
Your brother in law is a gem by the way, he gets a kiss from me, right after I give you one :)
xxxxm

willow said...

Glad to hear you're feeling good so far, Barry.

Anvilcloud said...

Poor Steve. I'd be saying a few fu's too. I hope day 2 goes just as well for you and better for your helper.

Midlife, menopause, mistakes and random stuff... said...

It is great that you had a big laugh about everything. Perhaps it is starting treatment is such a relief?? This fantastic attitude you have will make you triumphant Barry. Keep it going.
Take good care and........

Steady On
Reggie Girl

Meghann said...

Oh Poor Steve! I felt for the guy, he sounds like he has my luck.

I am so glad your first treatment is done, and I hope you continue to feel okay.

And whoever decided a cancer treatment should tell it's patients "FU" should be given a good swift kick in the @$$. Isn't that like adding insult to injury??

I'm mailing your little thing today, it might take some time though, as I couldn't afford to rush it (Canada Post's rates are a drag sometimes).
Hugs and prayers and happy thoughts!!

Ruth said...

What a tale for your first day of treatment. And too too funny about the FU. I wonder if anyone else has used that drug as an expletive before.

So glad you love the book. After reading it I decided I didn't really need to write a book after all.

Sarah said...

I'm so glad it's finally underway! Hoping you continue to feel better...

Dave King said...

I am so full of admiration for your courage. All the very best from now on. You sure deserve it.

The Bug said...

I totally enjoyed your account - but while you were relaxed & energized I was empathizing with your BIL - exhausting! It's so hot & humid here today so I was imagining running around in that.

Doreen said...

Barry, you will be glad you have documented your journey. By reading your's, I am remembering much of what I went through. I am with you all the way!!

RileyScott said...

LOL, i feel so bad for your brother-in-law. It sounds like something I would have done. You've got a great Fam Barry, and glad the first treatment wasn't too bad.

Barbara's Spot on the Blog said...

I'm curious about the people in the room with you while you were being treated. Your friendly action to wave is something I would do. I'm saddened by not surprised that they didn't wave back. But then when I wave from trains or boats often people don't wave back then too so I wonder if they are somehow caught off guard by it and don't know what to do.

Leslie Avon Miller said...

Sending you love, appreciation and care today Barry. And a link to an uplifting blog of a 2 time cancer survivor, which I think you might like. I just found it. http://www.becomingwhole.typepad.com/

Kerry said...

Dunno how you can make chemotherapy funny, but you do! Got my fingers crossed that the treatments continue to be, if not exhilarating, at least underwhelming.

Natalie said...

I'm so glad to know everything went okay with your first treatment. Your BIL is a sweetie. Is Lindsay at all curious about your new fanny pack? =)

stregata said...

I am sure the pump is saying FU to the cancer - it is going to be bullyed out!!! Oh my, that you can write about all this on such a light note... I so admire you for the way you are taking this. and I am glad you are fighting it. Say FU to it!! And not just 5 times! I believe you are so filled with energy, because finally, finally!! you are going to kick those cancers! Way to go, Barry!
Many, many emotional hugs.

gigi said...

Poor Steve, I'm sorry I laughed at his plight. But it just sounds all to familiar. And just how funny is FU?

Glad things went well for your fist time. That was sad that no one waved back. Made me sad for them. Maybe your attitude could rub off on them. I'm just sure it isn't fun but smiling does help things.

Lifting you up in my prayers. ((hugs))

Chef E said...

Well the title sent me running over here for sure...I have been saying FU to my house the past few days...a big high five to the brother in law running here and fro for you!

U had me with every word of this too!

leilani said...

Barry, i find it ironic that the drug used to treat ur cancer is called FU which is exactly what you have said to ur cancer =0) Love you Barry !

Patty said...

Barry, it has to be a mental relief just getting treatment. Reading your blog about getting treatment over the past months has been like reading a chapter book. "Will he or will he not get treatment? Tune in tomorrow."

We all worried about you so much. Now we all can have a sigh of relief, too, knowing you are finally going to get better.

We want our old Barry back, not that you have not amused us even in your darkest hours. But we sure want you well again, and fast!

Thank you, Barry, for showing us such great courage.

"You bee well."

Sammi said...

Hi Barry,

Sounds like you've had a horrible month, I hope things finally start moving now.

Sammi x

Michelle said...

Yes, steroids....:)

Wow Barry, I was in the room with you then, sounds like chemo rooms are all the same...xxxxxx

Debbie said...

Fugitive Pieces has been on my TBR list forever! Hearing you loved it will make me get off my rump and read it!
What a hoot that the drug is called FU. And the fanny pack story is great.

Kim said...

You are an amazing man...you have soooo much going on and here you are seeing the humor in it all and posting it to us.

Thanks for shining brightly!

Also, you Bro-in-law is an awesome dude!

My word verification is shine...now that's pretty neat!

FrankandMary said...

I ran an Oncology practice years back and I can remember the first time I wrote that down. I enjoyed it! Weird but true. ~Mary
ps oddly, it is an inexpensive drug which is not the norm for chemo, but it wasn't developed for chemo.

Queenmothermamaw said...

I remember 5 FU as being a drug I had administered for breast cancer back in the 70's. I think sometimes the old ones are the best. In a period of being in nursing for 30 years there are a lot of improvements in the protocols.
Blessings
QMM

Small Footprints said...

Maybe it was just your wonderful sense of humor and terrific attitude. Whatever the cause ... I'm glad it went so well!

I'm hoping that all of your treatments go well!

Small Footprints
http://reducefootprints.blogspot.com

GigiSxm said...

Finally!! Time to kick some cancer butt!!!
Glad your first session went well, good luck with the 5FU.
You are in my prayers

Si's blog said...

Interesting to read all the procedures and what you have experienced. Especially your telling of it.

And fascinating to read all your comments. Are these your blog groupies? Know that somehow all the caring and energy from them must be doing something to help.

Pavitra .... said...

Aww...poor steve!
I'm glad you feel much better....
Take care...

Emma Rose said...

Hang in there Barry. My Mother is a colon cancer survivor and she also wore a bag. I'm so glad to hear your first day went well.
you are in our prayers.

The Duchess (from Emma's blog)

kenju said...

I love your attitude, Barry. I hope you make it through all your chemo with humor intact!!



(BTW: My word verification is:

gollyho) LOL

Ann said...

I came to the end of your post, and I still did not know what a fanny bag is. I had to google search it, and found I have one, free when I bought some expensive glucosamine. It was meant for me to run my marathon again LOL.

What do you need a fanny bag anyway? to run the marathon??? LOL

How are you feeling, not nauseatic? Did you manage to read that book?

Wendy said...

Glad the day went well. Sounds like yours was better than Steve's. How weird is that?? :)

nollyposh said...

*Giggle* Dare i say it sounded like fun! Well ~almost~ i personally think it's the chemo angels giving you a little ~gift~ for your great attitude X;-)

Nancy said...

I don't think your brother-in-law expected to be quite so busy! sounds like he got his exercise for the day!

God bless you and yours for all you are having to go through all at once!

Jane said...

The exhilaration is probably the steroids (embrace them -- they do make a difference), but also the sweet knowledge that you are doing something. You are doing all you can -- never doubt it.

Thank you (and Reya) for coming to my blog, by the way.

l0ulii said...

You should visit my blog, it talks about french food, i give recipes and all ^^

And sorry for my english ><
Byee (k)